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23 Jun 2023 09:36 PM
23 Jun 2023 09:36 PM
I know so little about what you are going through, Sounds so frustrating. Ok hear goes.
I always feel these things need to be worked like a job. Big filing system. Registered letters and emails and keep going up till you get the boss. I got an NDIS ombudsman / complaints investigation unit with 4 phone calls, and I didnt even have a complaint..! just the autistic me exploring. Nice Indian fella.
Its your new career. When there's a 20kg of letters, you have a box of evidence of mishandling and incompetence then you'll discover their weakness. They are nervous of folks that keep meticulous records and keep hitting em with tonns of paper asking for responses "always in writing"..
3 copies of every letter.
I know its not you, but it is them, and you have to become them. You have to become better than
them.. Just methodically work each little piece. If nothing else .. in 3 years , you'll pass the bar
exam..!
So @EternalFlower . I just wish I could come down there and help. Thats all.
And I better add there are true angels in the gov system too. Over worked and under paid. You have to flip every rock on the beach to find them I'm afraid.
and at the end of the day, I would take apples and Thymes advice over mine any day.
I"ll get back to my harmonica. Try and sleep my friend. tonys
23 Jun 2023 09:53 PM
23 Jun 2023 09:53 PM
Thank you for posting @tonys .
I love your honest responses.
Hope you are recovering well. So glad you see you here.
23 Jun 2023 10:08 PM
23 Jun 2023 10:08 PM
Hi @Appleblossom sounds not so pleasant with a bossy controlling dynamic. I think they have centres all over, they also have a "pals" program i think.
The worker and i met just twice. Every other time, sick. I raised it and it was not received well. the worker didnt seem that interested anyway.
The issue was i had dental stuff she was meant to help and take me too and her being sick just made it worse. I needed that support and it was always tenuous, she wouldnt follow up or be clear when she was availible.
I think also when im not well i dont know what day it is, so when people dont show up i get confused and start to blame myself, like i forgot or was disorganised. So they can pull one over me that way.
I agree it is great to share and process this stuff.
I liked one of the workers and the mind phone line they gave me, but i didnt have much luck with them otherwise. They have peer workers as well but i was not able to access one.
23 Jun 2023 10:12 PM
23 Jun 2023 10:12 PM
Thankyou @tyme . Seep well n happy dreams. gnite all tonys
23 Jun 2023 10:53 PM
23 Jun 2023 10:53 PM
You are spot on @tonys as always and everyone benefits from ur wise words,!
Eek with the rattling med trolleys. Hope it is quiet in the hospital over the weekend.
It feels so cold tonight and dark...this winter is testing me. I need woolie layers , the gloves and the beanie.
It is so cold it is scary and kind of dark mentally.
A peer worker from the hospital called today to check in after mh ED visit, i said i couldnt talk (it was an unknown no and not a good time) . They then called me four times throughout the night plus texts. Idk. I am not answering just taking breaths and hope to reconnect to them next week.
I saw this week as a holiday of self care, and focused on just taking care of myself. It did me a world of good. Having holidays from mental illness because...why not?
I agree with what u said very much about taking notes and being one step ahead. It is an interesting way to regain power.
For example they blamed me for not calling and following up. I called twice. I try journal as well to have records...but then i lose the journals lol.
24 Jun 2023 11:04 AM
24 Jun 2023 11:04 AM
I liked the young fellow I spoke with on the phone for a few months, he was committed and followed through. I was sad that "he left" when I attended in person. I do not think it was his decision as I had spoken with him a week or 2 before. When I started to see all the power issues I realised they were not abouit empowering those struggling with mental health issues but having 'internal battles' to remain on top of those with MH struggles. @EternalFlower
So I guess one learning, is do not always blame yourself. That is what I am finding more and more. I was so apologetic about all the issues in me and my family. Apologised about everything. Too poor. Not educated. I am unworthy. Mea culpa mea culpa. Yesterday, I spoke to a young resistrar, who twice, in one interview thought we were discussing completely different cases ... once using the wrong name and once mentioning supposed 'hobbies' that were totally irrelevant to our circumstances. She was nice and was trying, but ...the psychiatric registrars are moved around a lot, so I understand her predicament, but I have never made those errors in my working life, and they have so much power over others. It was really important for me to recognise.
24 Jun 2023 02:48 PM
24 Jun 2023 02:48 PM
its tempting to shut the world out hey @EternalFlower The shortest day has passed. longer days will bring light ,warmth and hope very soon. This summer has to be the year of your awakening. You are young. The world needs you, and we have to find the keys. This must be the last year when winter offers little more than cold.
I now little of MH but it seems to gain a foothold in soft sensitive people. The very qualities that make such people so nice seem to leave them vulnerable if they are not "equipped'
Oh.. a well kept diary is considered a legal document in a court of law.
But thats the small stuff. I watch those links that @Appleblossom sends me from time to time.
she's good at rummaging and digging out treasure. There are little clues that pieced together, reveal much about ourselves if we can be receptive to truth. I glimpse flashes of colour in you now and then
that tell me , a second coming in you, is immanent, and you will be a gift to the world if you can just persevere and keep searching.
Hope you got the hot water bottles going. Man best kept secret.
Please go easy @EternalFlower . tonys
@Shaz51 @Oaktree @StuF @tyme And all . Hope the happy thoughts surround you as another day is lived. tonys
24 Jun 2023 08:07 PM
24 Jun 2023 08:07 PM
Hi @tonys hope ur doing ok in the hopsital. Is it quiet on the weekend?
Thanks for the reminder, I do have a kmart hot water bottle somewhere and the cold bed needs it.
It is true the coldest days are behind, in material and emotional ways
I have been accepted to get a bed in a ward this week and am unsure if i will take it . I think they are hard to come by but im taking a pause to see what i truly need. Many conflicting thoughts.
24 Jun 2023 09:13 PM
24 Jun 2023 09:13 PM
@EternalFlower It can be difficult to move from the mindset when we feel that we are wrong somehow, to realising someone else made the mistake.
I like @tonys tip re keeping records in a diary. I do just my planner, but I note outcomes and put in ticks when all went to plan.
I liked Lionel Corbetts... focus that psychosis can be a form of of the mind going through its own healing. Suggesting serious delusional aspects common in psychosis ... could be a personn dealing with their unconscious. When I look at my siblings and my state ward files and the comments they made about my father, it is very sad. Such narrow misinterpretations of things he said. Anyway when I listen to that stuff I reflect ... on it from different angles. When that doctor asked if my son had psychotic symptoms ... I responded with ... whats psychotic ... so I am challenging gently. If my son said that they would put it down to him being difficult. As a carer I try to put his circumstances in a more human perspective than pathologising ... though I knew he was unwell a few years ago.
I hope you find good supports from NDIS to help direct you towards recovery and achieving goals you desire.
Hey tonys hang in there ... mate ...they need you back on the ranch ,,,,
24 Jun 2023 09:59 PM
24 Jun 2023 09:59 PM
While its on offer @EternalFlower I would definatley take that bed. A door has opened. You can always walk back out. Curiosity would compel me through it.. Who might you meet, what might you learn, ? I know they are not holiday places, but its about exposing yourself to networks that may leed to other doors. Questioning and the pursuit of betterment can not be done from within the bunker.
Charge , fall , retreat, get up and charge again, until we recapture the sacred ground that is a
fulfilling life.
I won't mention they may have a better heater too... opps
Try go to sleep with the makings of a little smile. goodnight Eternal tonys mb 1
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